Family Communication Training Needs after TBI (FACT) V1
Research type
Research Study
Full title
Family perception of communication information and training needs following Traumatic Brain Injury.
IRAS ID
260091
Contact name
Myzoon Ali
Contact email
Sponsor organisation
Glasgow Caledonian University
Clinicaltrials.gov Identifier
N/A, N/A
Duration of Study in the UK
0 years, 5 months, 1 days
Research summary
High rates of re-referral and a breakdown in support networks for patients following moderate to severe Traumatic Brain Injury (TBI) led the Lanarkshire Community Brain Injury Team (CBIT) to identify service delivery to this population as a key area requiring development. Current research points to family support and training as essential for enabling people following brain injury to maintain their abilities and self-manage their condition in the community in the long term. Studies investigating family experience following TBI, however, identified high levels of unmet need at the point of discharge home and once living in the community. Maintaining relationships and communication were consistently highlighted as key unmet needs for families. The aim of this study is to develop more specific, in depth knowledge of what families feel they need in this area. The families of patients with moderate-severe TBI, who have been treated by the Lanarkshire CBIT will be invited to take part in a focus group. Group discussions will involve gathering the opinions of the participants on their perception of communication information and training needs for families following TBI. Data gathered will be transcribed verbatim and a qualitative, thematic analysis conducted to identify key themes. This project will develop CBIT’s insight into how best to support the communication training needs of family members and therefore ensure that service provision is more responsive to their needs at different stages in the recovery pathway.
REC name
West Midlands - Black Country Research Ethics Committee
REC reference
19/WM/0072
Date of REC Opinion
17 Apr 2019
REC opinion
Further Information Favourable Opinion