Families Experiences of Positive Behaviour Support
Research type
Research Study
Full title
Developing an Understanding of Family Engagement in Positive Behaviour Support.
IRAS ID
224751
Contact name
Sinead Botterill
Contact email
Sponsor organisation
Royal Holloway, University of London - Research Services
Duration of Study in the UK
1 years, 1 months, 6 days
Research summary
The proposed study will explore the experiences of family members of young people with learning and/or neurodevelopmental disabilities, such as autistic spectrum disorder, who receive positive behaviour support (PBS). PBS is considered best practice when working with challenging behaviours and focuses not only on reducing challenging behaviour but also on improving quality of life for the person and their family.
PBS involves a functional assessment to determine why the behaviour occurs and the development of a set of interventions aimed to change the environment and give the person new skills that render challenging behaviours unnecessary. Key to this is the involvement of everyone in their support network, including family members, and research has shown that behaviour support is more effective when this occurs. There has however been no previous research into what facilitates or acts as a barrier for family participation in PBS.
This study will interview family members of young people who have received or are receiving PBS with the aim of exploring their perceptions of positive behaviour support and what aspects they have found helpful and hindering in terms of their participation. The interviews will then be transcribed and analysed to identify common themes in their responses. It is intended that these could then help services to improve the way they work with families
REC name
London - Stanmore Research Ethics Committee
REC reference
17/LO/1110
Date of REC Opinion
17 Aug 2017
REC opinion
Further Information Favourable Opinion