Exploring the psychosocial impact of premalignant conditions (PIP)
Research type
Research Study
Full title
Exploring the psychosocial impact of premalignant conditions (PIP) via social media: Part of the PIP study
IRAS ID
215033
Contact name
Lesley Anderson
Contact email
Sponsor organisation
Queen's University Belfast
Duration of Study in the UK
0 years, 11 months, 0 days
Research summary
Premalignant conditions are a group of conditions that commonly precede cancer. Progression rates vary across conditions, but having a premalignant condition may have a detrimental effect on the psychosocial health and wellbeing of individuals and negatively impact their quality of life (QoL). Research has indicated that some premalignant conditions such as actinic keratosis may be more likely to impact patients, due to the associated symptoms, such as skin rashes. While, several studies have investigated the impact of living with a premalignancy on QoL, no single study has compared the impact on QoL across multiple premalignant conditions using consistent instruments/tools.
To investigate the impact of living with a premalignant diagnosis, we plan to undertake a cross-sectional online survey of patients diagnosed with any premalignant condition. A series of validated questionnaires used previously in populations with premalignant conditions and open ended questions will be used to assess QoL. Overall QoL will be analysed by each condition and comparisons made between premalignant conditions to determine if some premalignant conditions impact QoL more than other premalignant conditions.
Understanding the impact of a premalignant condition, both at the point of diagnosis and beyond, may assist in the development of intervention strategies to aid assessment and follow-up of patients considering potential psychosocial implications.
REC name
East Midlands - Leicester South Research Ethics Committee
REC reference
17/EM/0390
Date of REC Opinion
6 Nov 2017
REC opinion
Further Information Favourable Opinion