Exploring the family perspective in paediatric sepsis
Research type
Research Study
Full title
Exploring healthcare experiences among families whose children have been admitted to a Paediatric Intensive Care Unit in the north-east of England for treatment of sepsis.
IRAS ID
214563
Contact name
Rachel Agbeko
Contact email
Sponsor organisation
Newcastle Upon Tyne Hospital Trust, Joint Research Office
Duration of Study in the UK
0 years, 6 months, 1 days
Research summary
Sepsis occurs when the body’s natural immune system overreacts to infection. Although not common, childhood sepsis carries a high risk of death and long-term effects that may include post-traumatic stress, organ dysfunction and loss of limbs. If the condition is recognised early and appropriate treatment is given, then health outcomes are significantly improved. However the broad range of symptoms, many of which are also associated with less severe childhood illnesses, can complicate diagnosis. Collaborative work within the region is underway to develop an integrated care pathway that will support prompt recognition and treatment of paediatric sepsis. Much of the existing evidence on sepsis pathways relates to hospital-based care. It is hoped that strengthening the focus on early identification within the community setting will optimise the chances of successful treatment.
This study aims to improve current understanding of the family perspective among sepsis survivors by comprehensively exploring the child’s journey from home to hospital. Individual experiences of care will be used to highlight areas for service improvement. The identification of barriers and facilitators influencing the process will help to inform the ongoing development and implementation of overall pathways for care.
Study participants will comprise families of surviving children who have been admitted and treated for sepsis on a Paediatric Intensive Care Unit in the north-east of England. Potential participants will be identified and invited to participate in the study by senior members of the clinical team. Those willing will be asked to make direct contact with the researcher who will then arrange a convenient time for a one-to-one interview with a family member. Individual written consent will be taken prior to data collection and participants will be assured of confidentiality. Each participating family will be provided with a £10 voucher in recognition of their contribution.REC name
South West - Cornwall & Plymouth Research Ethics Committee
REC reference
17/SW/0119
Date of REC Opinion
13 Jun 2017
REC opinion
Further Information Favourable Opinion