Exploring Stories from Older People and Family Members with Dementia
Research type
Research Study
Full title
An Exploration of Stories of Older Persons and Family Members Living with Dementia
IRAS ID
255686
Contact name
Alex Walker
Contact email
Sponsor organisation
University of South Wales
Duration of Study in the UK
1 years, 3 months, 31 days
Research summary
The main aim of this research project is to explore and understand what it is like to live with dementia from the perspective of both the older person with dementia and their family members.
The proposed outcomes of this study are to improve awareness of life with dementia and suggest ways to improve the care/support offered to people affected by dementia.
For more in depth results, digital life stories will be used to explore the experiences of those affected by dementia. This study is exploring life with dementia from the perspective of both the older person with dementia and a family member. This is a two year long study and aims to recruit 15 people with dementia and 15 family members from the older person's services within CTUHB and ABUHB. It is important to acknowledge the "person behind the dementia" in order to fully understand their experiences of living with the disease; therefore, the participants with dementia will be asked to explain their life experiences from childhood, through to the present day and their hopes for the future, discussing dementia onset, dementia diagnosis, life with dementia, identity changes and relationship changes. The family members will be asked to describe their relationship with the person with dementia prior to dementia onset and explain if/how this relationship has changed, additionally, they will be asked to explain their experiences of dementia onset signs, the diagnosis process and services/support they have experienced.REC name
Wales REC 1
REC reference
19/WA/0242
Date of REC Opinion
6 Sep 2019
REC opinion
Unfavourable Opinion