Exploring social success in childhood cancer survivors
Research type
Research Study
Full title
EXPLORING SOCIAL SUCCESS AND ITS BARRIERS: A QUALITATIVE INTERVIEW STUDY OF ADULTS LIVING BEYOND CHILDHOOD CANCER
IRAS ID
317079
Contact name
Sarah Milner
Contact email
Sponsor organisation
University of Leeds
Clinicaltrials.gov Identifier
n/a, n/a
Duration of Study in the UK
1 years, 0 months, 0 days
Research summary
In the UK, more than 8 out of 10 children with cancer will survive to adulthood. However, the majority of these survivors will have health problems after they finish treatment. These include problems with their physical, mental and social health.
Social health problems are very important because they affect many areas of our lives and impact our physical and mental health. A recent study by this research team identified education, work and relationships as very important areas of social health for survivors, similar to the general population.
This study will investigate these areas in more detail to identify what social success and its barriers look like for childhood cancer survivors. It will also seek opinions on using information already held on survivors to better understand their health outcomes including social health.
We are inviting survivors and caregivers e.g. a parent or guardian for a 1 hour interview with a member of the research team. This will be over video-call or in person. It will focus on the areas described above. A patient and member of the public have been involved with developing the question guide.
Patients will be approached through the Leeds Teaching Hospitals long-term follow-up service. If they think it is appropriate, they will be asked to pass on information about the study to their caregivers. The study will also be advertised to potential participants through charities and social media.
The interviews will be brought together to build a picture of what social success looks like for those living beyond childhood cancer. This will guide future research and provide the right support to survivors in the areas most important to them.
Following this study, the methods will be used again explore social success in other childhood diseases such as congenital heart disease.
REC name
HSC REC B
REC reference
22/NI/0166
Date of REC Opinion
3 Nov 2022
REC opinion
Further Information Favourable Opinion