Exploring patients motivations to participate in health research
Research type
Research Study
Full title
Exploring patients motivations and the perceived barriers to particpating in clinical research in a primary care setting.
IRAS ID
239497
Contact name
Joanne Pike
Contact email
Sponsor organisation
Glyndwr University
Duration of Study in the UK
0 years, 3 months, 1 days
Research summary
Health research is essential in providing the evidence required to deliver safe and effective treatments and contemporary approaches to health care (Hardicre, 2013). Patient recruitment is an important determinant in the success of any research study. Insufficient recruitment to research trials present challenges that not only hinders the conduct and scientific validity of the study but also impose considerable cost implications for the researcher, this is a significant issue in randomised control trials (RCT) (Walsh and Sheridan, 2016). Primary care research is complex and faces similar challenges including limited resources, insufficient recruitment rates and can yield poor sample representation. The clinical research network in Wales (CRN) (2017) provides the infrastructure to support and facilitate research on a local level in Wales. Health and care research Wales (2017) recognise that public involvement and engagement is a key element of the success of clinical research and aims to create a greater focus and help embed public involvement.
Without the willingness of the public research would be impossible. The current literature in this field largely responds to patients motivations in participating in disease specific trials in areas such as oncology and chronic disease. However, there is a lack of knowledge about what motivates patients in the primary care setting to volunteer or decline to take part in a variety of clinical research trials. The proposal presents an opportunity to capture the impressions of patients' motivational factors and barriers for research participation. The study will perform a mixed methods investigation to examine why patients choose or decline to participate in clinical research in a general practice surgery. The findings of the study will be used to gain insight into patient perceptions towards research participation and to identify factors that will potentially optimise patient recruitment in primary care research. The study also aims to serve as a base for future studies.
REC name
London - Chelsea Research Ethics Committee
REC reference
18/LO/0574
Date of REC Opinion
28 Mar 2018
REC opinion
Favourable Opinion