Exploring pain in the CP population: Piloting a big data approach.
Research type
Research Study
Full title
Exploring the problem of pain in the CP population: Piloting a big data approach.
IRAS ID
179268
Contact name
Elena Guiomar Garcia Jalon
Contact email
Duration of Study in the UK
4 years, 11 months, 31 days
Research summary
Cerebral Palsy (CP) is the main cause of physical disability in childhood with a prevalence of 2.08 per 1,000 live births in Europe and 2.24 in NI (SCPE, 2002; Parkes et al., 2001). The Northern Ireland Cerebral Palsy Register (NICPR) it is one of the longest standing registers in Europe having surveyed CP for a 37 birth year span (1977-2014) identifying 2,302 of children with CP. A large European longitudinal project (SPARCLE) including Northern Ireland reported high prevalence of chronic pain in this population and its negative effect in their quality of life and participation (Parkinson et al., 2013). However, studies reliant on participants’ report are not exempt of recruitment bias (Dickinson et al., 2012). There is a need to further probe prescribing regimes for children with CP. The aim of this case control study is to explore the potential of data linkage between NICPR and Business Service Organisation Honest Brokers Service (BSO-HBS) to assess pain in the CP population. Method: a case control study where data will be obtained by linking the NICPR database and information held by BSO-HBS including Enhanced Prescribing database, Index deprivation scores, Settlement bands, the Family Practitioner Services and Health and
Care Index. The sample will include cases in the NICPR born in the years included in the SPARCLE studies.
Information for age and sex matched samples in the general population will also be requested for comparison.REC name
North East - York Research Ethics Committee
REC reference
15/NE/0265
Date of REC Opinion
24 Jul 2015
REC opinion
Favourable Opinion