Exploring and managing dementia in black African and Caribbean Elders
Research type
Research Study
Full title
Exploring and Managing Dementia in Black African and Caribbean elders and their family carers: a qualitative study
IRAS ID
247520
Contact name
Paul Higgs
Contact email
Sponsor organisation
University College London
Clinicaltrials.gov Identifier
Z6364106/2018/08/45, UCL Data Protection Registration
Duration of Study in the UK
2 years, 7 months, 31 days
Research summary
This is a qualitative study with semi-structured interviews and participant observations to explore how people from the UK’s Black ethnic groups and their families and friend carers conceptualise and manage memory problems and dementia, their expectations of and attitudes towards treatment and care, and the lived experience of the individuals with dementia who continue to live independently at home or move to a care home, and their family carers.
Moïse Roche (MR) was awarded a PhD fellowship by the Alzheimer’s Society to carry out this study, with Prof Paul Higgs (PH) as primary supervisor and Dr Claudia Cooper (CC) as secondary supervisor.
We plan to approach the topic from different perspectives by interviewing and observing 70 participants to include, people with dementia, family carers, and professionals from 3rd sectors, NHS and social care; in community and care home settings. We will analyse transcripts of the interviews and field notes using a thematic analysis framework for emerging themes, concepts and beliefs that motivate black families’ choices of dementia care pathway. We will use our findings to describe a culturally-informed dementia care pathway to improve how NHS services meets the needs of black families with dementia. We expect our findings will improve the experiences and the outcomes for the black individuals with dementia and their family carers by facilitating timely and appropriate access to diagnosis, support, and treatment.
REC name
Social Care REC
REC reference
18/IEC08/0030
Date of REC Opinion
16 Oct 2018
REC opinion
Further Information Favourable Opinion