Expert by Experience Pilot Study
Research type
Research Study
Full title
A Pilot Study of Enhancing Pain Related Self-efficacy: Patient Education Sessions and Involvement of Experts by Experience
IRAS ID
274255
Contact name
Paula Christmas
Contact email
Sponsor organisation
Norfolk and Norwich University Hospitals NHS Foundation Trust
Duration of Study in the UK
1 years, 0 months, 0 days
Research summary
A Pilot Study of Enhancing Pain Related Self-efficacy: Patient Education Sessions and Involvement of Experts by Experience.
Given the complexity of chronic pain, the prevalence in the UK and strain on health services, it is critical that an evidence base for interventions is established, particularly those which may reduce the strain on clinical time and resources. This study intends on recruiting out-patients as volunteers (Experts by Experience / EBE) to deliver presentations in chronic pain education sessions for other patients with chronic pain. It will analyse outcomes for both the patients attending the education sessions and the EBE. The outcomes measured will be self-efficacy, pain severity and interference, mood, satisfaction with life and patient experience.
The study duration is intended to be 12 months and will take place at a Pain Management Centre (Norfolk and Norwich University Hospitals Trust, NNUH).
Patients will attend the educational sessions at the service in either a Treatment as Usual (TAU) Group (with professionals, but no EBE) or Experimental Group (with professionals and EBE) and will be invited to complete measures before and after, to capture patient self-efficacy and experience of the session. They will also be invited to a voluntary semi-structured interview to assess outcomes qualitatively.
Experts by Experience will be patients at the Pain Management Centre. They will volunteer to participate, undergo background checks and complete training. Once a group of around 6 EBE are confirmed, they will support one another to create individual presentations about their experiences and pain management strategies. Each EBE will deliver their presentation on a rolling basis (on Tuesdays and Thursdays). The EBE's self-efficacy, pain severity and interference, mood, and satisfaction with life will be measured at 3 intervals throughout the study. They will also be invited to a semi-structured interview to assess outcomes qualitatively.
REC name
East of England - Essex Research Ethics Committee
REC reference
20/EE/0165
Date of REC Opinion
5 Aug 2020
REC opinion
Further Information Favourable Opinion