Experiences of the wellbeing of people with a high grade glioma
Research type
Research Study
Full title
Perceptions and experiences of wellbeing in people with a diagnosis of high grade glioma, and their impressions of how this is evaluated by healthcare professionals.
IRAS ID
153686
Contact name
Katie Sutton
Contact email
Sponsor organisation
King's College London
Duration of Study in the UK
2 years, 5 months, 29 days
Research summary
Title: Experiences of the wellbeing of people with a high grade glioma
Background:
High grade gliomas are a type of brain tumour that are particularly difficult to treat. As a consequence, research into high grade glioma has often focused on improving survival rates rather than quality of life. However, given the nature of the disease, patients may have complex needs and often experience a severe impact on their wellbeing.
Aim:
The purpose of this research is to explore the lived experiences of people with high grade glioma in terms of their wellbeing, and their perceptions of how this is evaluated by professionals. The ultimate intention of this study is to offer an evaluation of current approaches to monitoring wellbeing in people with high grade glioma, to explore whether they are addressing the issues that are relevant to them.
Method:
This research will be conducted at a large London hospital which offers specialist services for people with brain tumours. Patients who are over 16 years of age and receiving treatment for a high grade glioma at this centre will be invited to participate. The maximum number of participants involved will be fifteen. This is a longitudinal qualitative study, which will adopt a hermeneutic phenomenological approach. Participation will involve 3 interviews spread over a maximum period of 2 years at various stages in their treatment journey (following diagnosis and initial surgery, following first line treatment and during second line treatment). Interviews will be conducted at a time and place that is convenient for the participant, and will last no longer than one hour. Participants will be invited to have a carer/family member present during the interview should they wish to. Interviews will be audio-recorded, transcribed and analysed for prevalent themes.REC name
London - Brighton & Sussex Research Ethics Committee
REC reference
14/LO/1898
Date of REC Opinion
10 Dec 2014
REC opinion
Further Information Favourable Opinion