Experiences of key stakeholders in Non-Surgical Treatment of Perthes'
Research type
Research Study
Full title
What are the experiences of key stakeholders in NON-STOP (Non-Surgical Treatment of Perthes' Disease): A qualitative study
IRAS ID
300407
Contact name
Anthony Redmond
Contact email
Sponsor organisation
University of Leeds
Duration of Study in the UK
0 years, 6 months, 27 days
Research summary
Perthes’ Disease is a condition that results in collapse of a child’s hip bone, affecting their ability to run, play sports and some children find even walking difficult. There is lots of uncertainty around the treatment of Perthes’ Disease and a lack of consistent advice between Perthes’ Disease specialists. This can cause considerable anxiety to the parents of children with Perthes’ Disease. With the support of children with Perthes’ Disease, their families and clinicians, we plan to develop a digital intervention (an app) to assist with the rehabiltation of children with Perthes' Disease.
This study is an important step in the development of the app, during which we plan to explore the experiences and viewpoints of the most important people involved in Perthes’ Disease. We will ask children with Perthes’ Disease and their families, and healthcare professionals like surgeons and physiotherapists, what they think is important when caring for children with Perthes’ Disease. Discussions will also include how they would like to receive that care, specifically considering how rehabilitation care can effectively be delivered using a digital app. Participants for this study will be asked to take part from any hospital in the UK currently managing children with Perthes’ Disease. The interviews will continue until we have recruited up to 20 pairs of children with Perthes’/guardian and 12 NHS staff who care for those with Perthes’ Disease.
The results of this study will be shared so that it is accessible by all. We will produce articles to be published in medical journals as well as information to share with groups who support children with Perthes’ Disease, and through social media. We will ensure results are fed back in a ‘fun’ child-friendly way, using videos and electronic leaflets to make sure the answers we get are available to everyone.
REC name
West of Scotland REC 1
REC reference
21/WS/0138
Date of REC Opinion
1 Dec 2021
REC opinion
Further Information Favourable Opinion