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Experiences of HSCT treatment for Multiple Sclerosis

  • Research type

    Research Study

  • Full title

    Expectations and Experiences of Haematopoietic Stem Cell Transplant Treatmentation for Multiple Sclerosis

  • IRAS ID

    248788

  • Contact name

    Maria Burton

  • Contact email

    m.burton@shu.ac.uk

  • Sponsor organisation

    Sheffield Hallam University

  • Clinicaltrials.gov Identifier

    STH20680, Sheffield Teaching Hospitals NHS Foundation Trust

  • Duration of Study in the UK

    4 years, 8 months, 19 days

  • Research summary

    The aim of the study is to explore the expectations and experiences of people receiving Hematopoietic stem cell Transplantation (HSCT) as a treatment for relapse remitting multiple sclerosis (MS).
    Methodology
    A longitudinal, qualitative research study over a twelve month period will be conducted, based on phenomenology and interpretative phenomenological analysis (IPA).
    Data Collection
    Purposive sampling will recruit a maximum of 12 patients (minimum 8)aged 18+ receiving their HSCT treatment within one NHS site in the North of England. Data collection methods will include semi-structured interviews and a reflective art-based activity based on the KAWA model, as a tool to facilitate discussion. Interviews will commence 2 weeks before HSCT treatment, and then at 6 weeks, 4 months and 12 months post treatment.
    Data Analysis
    The principles of IPA will be applied for data analysis, in order to sort raw data into conceptual categories and seek to find themes which arise.

  • REC name

    Yorkshire & The Humber - South Yorkshire Research Ethics Committee

  • REC reference

    19/YH/0108

  • Date of REC Opinion

    2 Apr 2019

  • REC opinion

    Favourable Opinion