Experiences of HSCT treatment for Multiple Sclerosis
Expectations and Experiences of Haematopoietic Stem Cell Transplant Treatmentation for Multiple Sclerosis
Sheffield Hallam University
STH20680, Sheffield Teaching Hospitals NHS Foundation Trust
Duration of Study in the UK
4 years, 8 months, 19 days
The aim of the study is to explore the expectations and experiences of people receiving Hematopoietic stem cell Transplantation (HSCT) as a treatment for relapse remitting multiple sclerosis (MS).
A longitudinal, qualitative research study over a twelve month period will be conducted, based on phenomenology and interpretative phenomenological analysis (IPA).
Purposive sampling will recruit a maximum of 12 patients (minimum 8)aged 18+ receiving their HSCT treatment within one NHS site in the North of England. Data collection methods will include semi-structured interviews and a reflective art-based activity based on the KAWA model, as a tool to facilitate discussion. Interviews will commence 2 weeks before HSCT treatment, and then at 6 weeks, 4 months and 12 months post treatment.
The principles of IPA will be applied for data analysis, in order to sort raw data into conceptual categories and seek to find themes which arise.
Yorkshire & The Humber - South Yorkshire Research Ethics Committee
Date of REC Opinion
2 Apr 2019