Experiences of forced migration in children’s palliative care version1
Research type
Research Study
Full title
Exploring the experiences of forced migrant families and those who care for them in children’s palliative care (CPC)
IRAS ID
281987
Contact name
Marie Clancy
Contact email
Sponsor organisation
University of Birmingham
Duration of Study in the UK
1 years, 6 months, 0 days
Research summary
Children and their families who are forced migrants (refugees/asylum seekers) are rarely studied in child health literature or involved in research regarding the care they receive. The needs of forced migrant children who require care for life-limiting or life-threatening conditions which may not get better, are complicated and vast. These include grief and loss for normality and home, displacement, unmet family needs, powerlessness and relentless care-giving. For the health care professionals who care for forced migrant children and their families the diversity and differences in cultural, spiritual and religious need may be bewildering and confusing.
The aim of this study is to understand the care experiences of forced migrant families in the context of children’s palliative care in a range of settings including hospital, hospice and community care.The methods employed will include in-depth interviews with children (where possible), their families and health care professionals chosen by the families. An interpretative phenomenological analysis approach will be taken to prioritise the voices of this marginalised group alongside creative methods such as art and poetry.
Data analysis will identify the main themes discussed and these will be combined to help understand children and families experiences of care. Findings will be developed to identify what factors enhance or hamper care from the perspectives of families and health care professionals, with a view to developing recommendations for improvement.
Advisory groups will be an essential part of the study throughout to form a collaborative approach. This study intends to explore how families might be best reflected or represented within research to ensure this and future studies are sensitive, relevant and empowering to the community they focus upon.REC name
Yorkshire & The Humber - Leeds West Research Ethics Committee
REC reference
20/YH/0334
Date of REC Opinion
20 Jan 2021
REC opinion
Further Information Favourable Opinion