Experiences of Disclosure in Adolescents with Coeliac Disease
Research type
Research Study
Full title
Understanding Perceived Barriers to the Disclosure of Psychological Difficulties by Young People with Coeliac Disease
IRAS ID
271265
Contact name
Miranda Wheeler
Contact email
Sponsor organisation
University of Oxford, Clinical Trials and Reserach Governance
Duration of Study in the UK
1 years, 4 months, 1 days
Research summary
Being diagnosed with coeliac disease means that you can no longer consume things containing gluten, such as bread or cake, or you can become very ill. This can make situations involving food challenging, such as social situations or lunch at school. We know that being diagnosed with coeliac disease as a teenager can be particularly upsetting and can lead to problems such as anxiety or low mood. Research suggests that when young people are worried about the impact of their condition on their life, they can find it challenging to tell their doctor or ask for support.
We would like to understand the experiences of young people with coeliac disease who attend the Paediatric Gastroenterology service at the Oxford Children’s Hospital. We are particularly interested in the reasons why young people either feel able or unable to tell their doctor that they are experiencing difficulties relating to their wellbeing during their appointments, in order to improve support for young people.
This study aims to recruit young people between the ages of 11 and 16, who are attending secondary school, to ask them about the things that make it easier or more difficult to share any concerns about their wellbeing with their doctor.
The full research proposal for this project and all documents referred to in this application are uploaded as appendices to this form.
REC name
Wales REC 4
REC reference
19/WA/0323
Date of REC Opinion
23 Dec 2019
REC opinion
Further Information Favourable Opinion