Experiences of Decision Support Tool meetings
Research type
Research Study
Full title
Experiences of a shared decision-making process in healthcare allocation: A framework analysis using parent-nurse dyads
IRAS ID
253740
Contact name
Gemma LH Evans
Contact email
Sponsor organisation
University of Leicester
Duration of Study in the UK
0 years, 8 months, 1 days
Research summary
Shared decision-making is a fundamental aspect of ‘person-centred care’; the national drive to promote this has been reflected across policy commitments and law. However, decision-making processes in healthcare have not transformed over recent years and occurrence continues to be limited in routine clinical practice, indicating potential barriers.
The National Framework for Children and Young People’s Continuing Care supports clinical commissioning groups (CCGs) nationally in assessing if a package of continuing care is required to provide additional health support to individuals under the age of 18. Decision Support Tool (DST) meetings support the assessment and shared decision-making phase of acquiring an appropriate continuing care package. It has been observed that these meetings can be difficult and potentially distressing for attendees. These anecdotal accounts identify the DST meetings as an opportunity to learn more about the experiences of the processes involved in shared-decision making and, in particular those related to healthcare allocation, from the perspectives of both the nurse and parent roles. There is currently a limited understanding of how the DST meetings are experienced by the different stakeholders, including the difficult and facilitative aspects of the process.
This is a qualitative study aiming to learn more about the experiences of parents and nurses in attending DST meetings. Data collection will primarily occur through semi-structured interviews. A framework approach will be used throughout the analytic process; this approach allows for transparency in exploring the data from both theme and case-based perspectives A dyad approach (nurse-parent) will allow themes to be explored between and within data from parent and nurse participants, as well as allowing interactional effects to be considered; generating a more thorough understanding of the experiences.
This research is likely to be of interest to a wide readership due to the potential resonances with other shared decision-making processes.REC name
London - Riverside Research Ethics Committee
REC reference
19/LO/1306
Date of REC Opinion
29 Jul 2019
REC opinion
Favourable Opinion