Experiences, attitudes and expectations of hepatitis C virus infection
Research type
Research Study
Full title
Experiences, attitudes and expectations of hepatitis C virus infection recurrence after liver transplantation: an interpretative phenomenological analysis.
IRAS ID
153106
Contact name
Adele Dickson
Contact email
Sponsor organisation
Edinburgh Napier University
Research summary
Much of the research to date on the outcomes of liver transplantation in patients with hepatitis C has approached the
problem from either the perspective of the medical provider or the healthcare system. To better understand these
outcomes from the patients' and their caregivers’ perspectives this study aims to explore their personal experiences,
attitudes and expectations of life after transplantation and virus recurrence, as well as to establish the ways in which
the quality of life of the patients and their primary caregivers are affected by virus recurrence. Participants will be
recruited via the Scottish Transplant Unit at the Royal Infirmary of Edinburgh (RIE). All participants will take part in a
oneoff
semistructured
interview asking them about their experiences, attitudes and expectations of posttransplant
virus recurrence. Hepatitis C virus patients will be asked about psychosocial impact of liver transplantation and
diagnosis of virus recurrence (e.g. impact on quality of life and their relationships,coping strategies). Primary
caregivers will be asked about the impact of caregiving (e.g. coping with stress, how their role changed after the
person they care of had undergone liver transplantation). The interviews will be conducted at the Welcome Clinical
Research Facility at the RIE,in private and confidential rooms. Participants will be asked to explain their experience with
hepatitis C virus in their own words, but they can also talk freely about any aspect of their lives affected by
transplantation or virus recurrence if they wish to. Interviews will be tape recorded and transcribed, with the transcripts
used as the raw data to be analyzed using the Interpretative Phenomenological Analysis (IPA) approach.
A62.REC name
West of Scotland REC 3
REC reference
14/WS/0122
Date of REC Opinion
27 Jun 2014
REC opinion
Further Information Favourable Opinion