Experience of remission in skin disease

  • Research type

    Research Study

  • Full title

    The experience of remission in skin disease

  • IRAS ID

    305600

  • Contact name

    Daniella Allard

  • Contact email

    daniella.allard@city.ac.uk

  • Duration of Study in the UK

    1 years, 6 months, 1 days

  • Research summary

    This research addresses the question: What is the experience of remission from skin disease (SD)? This is of relevance to dermatology patients as existing studies have focused on the psychological impact of active SD (e.g. depression, anxiety, social withdrawal) but paid little attention to remission.

    Many SDs are chronic and intermittent (e.g. psoriasis, eczema), meaning those affected will have unpredictable periods of flare up followed by total or partial skin clearance. Data from quantitative biologic trials suggests that the psychological impacts of SD may not decline proportionately as skin heals. However, skin improvement remains the key metric for discharging patients from services, despite the fact that significant, related psychological symptoms may remain.

    This research is therefore important in exploring individual experiences of SD remission, beyond the severity of skin symptoms (e.g. size of eczema patches). A potential benefit of this study is patient-led insight into a neglected phase of the SD cycle, which may inform clinical decisions about discharge and psychological referral.

    Those who have been discharged from the Royal Free Psychodermatology service in the last five years will be eligible to participate. 6-8 participants will take part in an audio-recorded, one-to-one, semi-structured interview, either via Zoom or at the Royal Free (depending on preference).

    This will be a qualitative study using interpretative phenomenological analysis (IPA) to prioritise participant experiences. It will last approximately two years. The research is not anticipated to accrue any costs aside from participant travel to in-person interviews. Any costs will be covered by the researcher. There is no external funding for this project.

  • REC name

    London - Camden & Kings Cross Research Ethics Committee

  • REC reference

    21/LO/0904

  • Date of REC Opinion

    1 Feb 2022

  • REC opinion

    Further Information Favourable Opinion