Evaluation Of Patient Organiser For Patients with IPF

  • Research type

    Research Study

  • Full title

    PILOTING OF AN IDIOPATHIC PULMONARY FIBROSIS (IPF) ORGANISER

  • IRAS ID

    168671

  • Contact name

    OWEN DEMPSEY

  • Contact email

    owen.dempsey@nhs.net

  • Duration of Study in the UK

    0 years, 6 months, 0 days

  • Research summary

    We have developed a personal organiser for patients who have a lung disease called idiopathic pulmonary fibrosis (IPF). We are keen to assess whether this personal organiser is of value to patients with IPF who attend Aberdeen Chest Clinic. Patients who wish to participate are asked to use the organiser for up to a 6 month period. At the beginning and end of the 6 month period they are asked to fill in a 5-10 minute questionnaire and, should they wish, participate in a discussion group led by a member of the British Lung Foundation asking them what they thought of the personal organiser. The results of the research will be written as a report and possibly published at a chest conference so others can learn of the results.

  • REC name

    HSC REC B

  • REC reference

    15/NI/0085

  • Date of REC Opinion

    19 May 2015

  • REC opinion

    Further Information Favourable Opinion