Evaluation of Care (EduCatIon) and treatment reviews (CECiLiA) Stage 2
Research type
Research Study
Full title
An evaluation of Care (EduCatIon) and treatment reviews for people with Learning dIsabilities and Autistic people(CECiLiA) Stage 2
IRAS ID
362017
Contact name
Karen Bunning
Contact email
Sponsor organisation
Coventry and Warwickshire Partnership NHS Trus
Clinicaltrials.gov Identifier
NCT06918483, ClinicalTrials.gov
Duration of Study in the UK
1 years, 3 months, 10 days
Research summary
In 2014, Care (Education) and Treatment Reviews (C(E)TRs) were introduced to try to reduce the number of people with learning disabilities and autistic people being admitted to psychiatric hospitals and to encourage discharge of those already within hospital. However, we know very little about whether C(E)TRs lead to successful outcomes and how they can be improved.
In this research project, we will evaluate C(E)TRs and assess whether they are helpful for people with learning disabilities and autistic people and their families. This is so we can develop good practice guidance for conducting C(E)TRs and implementing outcomes, including how to promote inclusion and participation for people with learning disabilities and autistic people.
Our project has four stages and will be completed over three years. This ethics application is for Stage 2. Stage 1 was previously given a favourable ethical opinion (IRAS ref 350098). Within Stage 2, we will find out how patients in hospital are doing over time, by attending Care (Education) and Treatment Reviews, Care Programme Approach (CPA), and other patient meetings. We will ask people, including people with moderate and severe learning disabilities to take part in interviews, ensuring that these are adapted to be accessible for everyone. We will use the information from these observations and interviews to work out whether Care (Education) and Treatment Reviews are helping people and making things better.
We have partnered with Learning Disability England (LDE), the National Autistic Society (NAS), and the Challenging Behaviour Foundation (CBF) who are leading one of our three Lived Experience Advisory Panels (LEAPs): (a) people with learning disabilities, (b) autistic people, and (c) carers and family members. Each LEAP has a key role in the co-production and co-design of our interviews, temporal pathway, interpreting our findings, and publishing our good practice guidance.
REC name
South Central - Berkshire Research Ethics Committee
REC reference
25/SC/0285
Date of REC Opinion
18 Sep 2025
REC opinion
Favourable Opinion