Evaluation of Care (EduCatIon) and treatment reviews (CECiLiA) Stage 1
Research type
Research Study
Full title
An evaluation of Care (EduCatIon) and treatment reviews for people with Learning dIsabilities and Autistic people (CECiLiA)
IRAS ID
350098
Contact name
Peter Langdon
Contact email
Sponsor organisation
Coventry and Warwickshire Partnership NHS Trust
Duration of Study in the UK
3 years, 0 months, 0 days
Research summary
In 2014, Care (Education) and Treatment Reviews (C(E)TRs) were introduced to try to reduce the number of people with learning disabilities and autistic people being admitted to psychiatric hospitals and to encourage discharge of those already within hospital. However, we know very little about whether C(E)TRs lead to successful outcomes and how they can be improved.
In this research project, we will evaluate C(E)TRs and assess whether they are helpful for people with learning disabilities and autistic people and their families. This is so we can develop good practice guidance for conducting C(E)TRs and implementing outcomes, including how to promote inclusion and participation for people with learning disabilities and autistic people.
Our project has four stages and will be completed over three years. This ethics application is for Stage 1. Within Stage 1, we will complete online national surveys with people with learning disabilities and autistic people, families and carers, C(E)TR panel members, and health and social care professionals to help our understanding of what it is like to take part in C(E)TRs and how they are carried out in practice.
For those participants who may find it difficult to complete an online survey form we will use a structured interview approach using Talking Mats® (www.talkingmats.com) with or without manual sign support (https://makaton.org) based on their communication needs and preferences.
We have partnered with Learning Disability England (LDE), the National Autistic Society (NAS), and the Challenging Behaviour Foundation (CBF) who will each lead one of our three Lived Experience Advisory Panels (LEAPs): (a) people with learning disabilities, (b) autistic people, and (c) carers and family members. Each LEAP throughout the project will have a key role in the co-production and co-design of our surveys, interpreting our findings, and publishing our good practice guidance.REC name
South Central - Hampshire A Research Ethics Committee
REC reference
25/SC/0014
Date of REC Opinion
28 Jan 2025
REC opinion
Favourable Opinion