Evaluation of a children and young person's pain clinic

  • Research type

    Research Study

  • Full title

    Evaluation of a new multidisciplinary paediatric persisting pain clinic

  • IRAS ID

    231628

  • Contact name

    Annakarenia Anderson

  • Contact email

    annakarenia.anderson@nhs.net

  • Sponsor organisation

    Royal Marsden NHS Foundation Trust

  • Duration of Study in the UK

    1 years, 2 months, 4 days

  • Research summary

    The CHAMP (Centre for the Holistic Approach for Management of Paediatric Pain) service is a charity funded service running a weekly multi-disciplinary pain clinic at the Royal Marsden Oak Centre for children and young people starting in September 2017. The charity funding lasts for three years, after which funding from commissioners will be sought.
    Our approach is to work in partnership with the child and their parents, GPs, oncologists and others involved in the child’s care to deliver a child focused, family centred pain service. This is to enable children and young people to achieve their individual goals with regards to pain management.
    At their initial clinic appointment children and young people and their parents will be reviewed by a consultant paediatrician and a clinical nurse specialist (CNS). They will also meet other members of the multi-disciplinary team (MDT) such as a physiotherapist and psychologist. These team members will follow up the children and young people in subsequent clinic appointments as per their individual treatment plan.
    Health related questionnaires about each child/young person’s pain and well-being will be used at their initial appointment and then at specific points throughout their pain management program to measure response to interventions. These questionnaires measure pain location and intensity, the impact of pain on physical activities, quality of life, pain catastrophising and anxiety and depression. All of these measures are commonly used by other paediatric pain services. These questionnaires will be used as part of the child/young person’s routine clinic appointments in order to guide their treatment plan and monitor their progress, whether they want to be involved in this research study or not. This research proposal is seeking to use these routinely completed measures to establish whether the pain clinic interventions are improving pain and well-being in children referred to the CHAMP service.

  • REC name

    London - Brighton & Sussex Research Ethics Committee

  • REC reference

    18/LO/1869

  • Date of REC Opinion

    24 Jan 2019

  • REC opinion

    Further Information Favourable Opinion