Evaluating provision for children with Down syndrome
Research type
Research Study
Full title
Evaluating variation in special educational needs provision for children with Down syndrome and associations with emergency use of hospital care.
IRAS ID
177370
Contact name
Ruth Gilbert
Contact email
Sponsor organisation
UCL Institute of Child Health
Clinicaltrials.gov Identifier
Z6364106/2015/06/18, UCL Data Protection Registration
Duration of Study in the UK
3 years, 3 months, 31 days
Research summary
Policy makers recognise the strong interrelationship between health, education and social care for children, but evidence is lacking on how these services complement or compensate for each other, for children with Down syndrome. This study aims to inform policy about the impact of supportive service provision outside a healthcare setting on health outcomes, such as emergency hospital admissions. Our aim is to define a comprehensive cohort of children with Down syndrome in England and Wales, to define their health profile, and compare it with the general population. Using healthcare records, we will follow cohorts of children from birth, primary school entry and secondary school entry and determine whether local authority variation in the type and timing of education support and/or out of home care is associated with emergency use of hospital services.
REC name
London - Camden & Kings Cross Research Ethics Committee
REC reference
16/LO/0094
Date of REC Opinion
2 Feb 2016
REC opinion
Favourable Opinion