Equity in dementia service provision v1.0
Research type
Research Study
Full title
Do people with dementia and their families get the care and support they want? Comparing experiences of people from a South Asian and white-British background.
IRAS ID
277686
Contact name
Gill Livingston
Contact email
Sponsor organisation
UCL Joint Research Office
Duration of Study in the UK
2 years, 6 months, 23 days
Research summary
This project is part of a PhD investigating equity in service provision for people with dementia and their families, and specifically whether people from a South Asian background get the care and support they want and need. We plan to carry out semi-structured interviews with people with dementia and their family carers from a South Asian and white-British background to compare experiences.
We will recruit participants from memory services within and outside of London via the Clinical Research Network and Join Dementia Research, and will contact people who have previously been involved in research at UCL and have consented to being contacted for future studies. We plan to recruit 12-15 people with dementia from a South Asian background and 12-15 from a white-British background plus their family carers. We will purposively sample people with a range of characteristics in terms of sex, dementia type and severity, relationship of carer to person with dementia, religion, and country of origin. We aim to gain informed consent from all participants but will consult family carers and gain consent in line with the Mental Capacity Act 2010 if a person with dementia is assessed as lacking capacity to consent.
We will collect demographic information about participants’ age, sex, ethnicity, religion, job history and level of education and their protected characteristics defined by the UK Equality Act 2010 to investigate how these interconnect and influence experiences of care and support. We will ask for consent to access electronic health records of people with dementia to capture information about their diagnosis and the care and support they have been offered and received. Individual interviews are expected to take between 20 minutes and one hour. Descriptive statistics will be used to present demographic information. Interviews will be audio-recorded, transcribed using a professional transcribing service, and thematically analysed.
REC name
Yorkshire & The Humber - Leeds West Research Ethics Committee
REC reference
20/YH/0338
Date of REC Opinion
5 Feb 2021
REC opinion
Further Information Favourable Opinion