Epidemiological study of influences on Gorlin syndrome outcome
Research type
Research Study
Full title
Epidemiological study of influences on Gorlin syndrome outcome
IRAS ID
208806
Contact name
Yi Ning Chiang
Contact email
Sponsor organisation
Macmillan Cancer Support
Duration of Study in the UK
2 years, 0 months, 0 days
Research summary
This is a survey for a cohort of patients with Gorlin's syndrome receiving treatment at the Central Manchester University Hospital and the Christie Hospital. A multi-disciplinary treatment service for this condition involving geniticist, plastic surgeon, dermatologist and oncologist, has been established by the Dermatology team. The study aims to assess the factors influencing the outcome of Gorlin syndrome.
A questionnaire will be distributed over 12 months period to all patients receiving treatment for Gorlins' sydrome in the department.
Currently there is no investigation as to the association of risk factors, ultraviolet sun exposure and outcome, such as numbers and sites of basal cell carcinomas, treatment and quality of life.
The results of the study will help us to identify the factors influencing the outcome of Gorlin's syndrome and improve the service provided for the patients.
REC name
West Midlands - Edgbaston Research Ethics Committee
REC reference
17/WM/0109
Date of REC Opinion
17 Mar 2017
REC opinion
Favourable Opinion