ePHRma v.1

  • Research type

    Research Study

  • Full title

    A mixed methods realist evaluation of electronic personal health records design and use to help patients get the full benefit of their prescribed medication.

  • IRAS ID

    240533

  • Contact name

    Elisavet Andrikopoulou

  • Contact email

    up629097@myport.ac.uk

  • Sponsor organisation

    University of Portsmouth

  • Clinicaltrials.gov Identifier

    CRD42017060542, PROSPERO registration; 13014819, ISRCTN registration

  • Duration of Study in the UK

    2 years, 11 months, 19 days

  • Research summary

    The purpose of this mixed methods study is to determine how best electronic personal health records (PHRs) should be designed and utilised to help patients get the full benefit of their prescribed medication. In this realist evaluation there will be several stages conducted over time. The stages are:
    1. A review of previous research and patient and public involvement (PPI) consultation to inform the study design and the selection of two relevant long-term conditions as the study focus;
    2. Design interview questions and a survey to gather both numerical and textual information from the participants;
    3. Conduct the interviews and run the survey;
    4. Analyse the interview and survey responses;
    5. Merge the numerical and textual analysis;
    6. Explore what the findings indicate about what works from whom in what circumstances;
    7. Reflect upon the findings and their interpretation to propose an explanation of PHR factors and patient circumstances that result in best outcomes.
    In this study the textual data from the interviews are considered the most important, based on our aims and objectives. The numerical (survey) data will be used to clarify and further explore the textual. The reason for collecting both textual and numerical data is that the two forms of data will bring greater understanding of the problem than would be obtained by either type of data separately.

  • REC name

    North East - Newcastle & North Tyneside 2 Research Ethics Committee

  • REC reference

    18/NE/0253

  • Date of REC Opinion

    7 Aug 2018

  • REC opinion

    Favourable Opinion