EMBRACE v1.0
Research type
Research Study
Full title
Ethnic Minority Backgrounds: Reflections on Access, Care and Experiences (EMBRACE)- a qualitative study of parent-carer perspectives
IRAS ID
354189
Contact name
Lorna Fraser
Contact email
Sponsor organisation
King's College London
Duration of Study in the UK
1 years, 1 months, 1 days
Research summary
Current evidence surrounding the experiences of ethnic minority parent-carers of children with a life-limiting condition is limited. We know that individuals from ethnic minority groups are more likely to report poorer health outcomes and poorer access to, and experiences of, healthcare but how such health inequalities may manifest in this parent-carer population is unknown. Similar inequalities in the delivery of palliative care have been shown, but we do not fully understand how this may be contributing to addressing or worsening inequalities for ethnically diverse children and families in the context of paediatric palliative care. This study will use qualitative methods to explore ethnic minority parent-carers experiences. Not only will this begin to address the dearth of evidence related to these families’ support needs, it will also begin to identify how policy and practice might be developed to ensure equity in access to any future interventions or support. Parents will take part in individual semi-structured interviews during which they will be asked about their experiences of providing care and accessing services for their child, their own health and support needs, as well as their preferences for support.
REC name
Yorkshire & The Humber - South Yorkshire Research Ethics Committee
REC reference
25/YH/0123
Date of REC Opinion
30 Jul 2025
REC opinion
Further Information Favourable Opinion