Effectivness of technology to support adrenal incidentalom patients

  • Research type

    Research Study

  • Full title

    A review of effectiveness of digital technology and tele-communication combined with nurse-led assistance to support patients living with adrenal incidentaloma

  • IRAS ID

    292114

  • Contact name

    Ideh Kont

  • Contact email

    ideh.kont@uhnm.nhs.uk

  • Sponsor organisation

    Staffordshire University

  • Clinicaltrials.gov Identifier

    N/A, N/A

  • Duration of Study in the UK

    0 years, 9 months, 30 days

  • Research summary

    There is very limited information about the patients’ experience and their quality of life after being diagnosed with adrenal incidentaloma and how a combination of digital technology and professional skills can help and support patients. This study we are addressing the fears and concerns that newly diagnosed patients with adrenal incidentaloma face. Adrenal incidentaloma is a common endocrine diagnosis and effecting 2% of the general population. All newly diagnosed adults (age 18 and above) who are seen by a clinician after their scans and are able to give informed consent are eligible. The study will be conducted in University Hospital of North Midlands and it will be last between six to twelve months.The participants will have a meeting with the clinician who will explain the purpose of the study to them and after gaining consent, the researcher will interview the participants and data will be collected. Based on the data provided an informative digital platform will be design and participants will be asked to use it and in second interview with the researcher they will express if the platform support them to cope with their diagnosis better and it improves their quality of life.

  • REC name

    Yorkshire & The Humber - Leeds West Research Ethics Committee

  • REC reference

    21/YH/0227

  • Date of REC Opinion

    8 Nov 2021

  • REC opinion

    Further Information Favourable Opinion