Effect of fetal aortic valvuloplasty on outcomes.

  • Research type

    Research Study

  • Full title

    Effect of fetal aortic valvuloplasty on outcomes. A prospective observational cohort study with a comparison cohort.

  • IRAS ID

    312133

  • Contact name

    Anna Seale

  • Contact email

    annaseale@nhs.net

  • Sponsor organisation

    Children´s Heart Centre, Queen Silvia Childrens Hospital, Sahlgrenska University Hospital

  • Clinicaltrials.gov Identifier

    NCT05386173

  • Clinicaltrials.gov Identifier

    ClinicalTrials.gov, NCT05386173

  • Duration of Study in the UK

    5 years, 0 months, 1 days

  • Research summary

    In one of the most severe congenital heart defects, hypoplastic left heart syndrome (HLHS), the left ventricle is underdeveloped and the prognosis is worse than in most other heart defects. The underdevelopment can occur gradually during fetal growth caused by a narrowing of the aortic valve. At some international centers, such fetuses are treated with a balloon dilation of the narrowed valve, but there is no scientifically sound evidence that this treatment is effective.
    The aim of this study is: 1/ to evaluate whether balloon dilation during the fetal period of a narrowed aortic valve can reduce the risk of the left ventricle becoming underdeveloped and the baby being born with a so-called univentricular heart (HLHS); 2/ to investigate whether such treatment improves the prognosis for this group of children with a very complex and severe heart defect and 3/ to also describe side effects and risks in fetuses and mothers of the fetal procedure.

  • REC name

    North West - Preston Research Ethics Committee

  • REC reference

    23/NW/0010

  • Date of REC Opinion

    24 Feb 2023

  • REC opinion

    Further Information Favourable Opinion