Early Psychosis Support Service Database
Research type
Research Database
IRAS ID
210689
Contact name
Helen Griffiths
Contact email
Research summary
Early Psychosis Support Service Database
REC name
Scotland A: Adults with Incapacity only
REC reference
17/SS/0116
Date of REC Opinion
8 Nov 2017
REC opinion
Favourable Opinion
Data collection arrangements
This database will contain information on young people receiving treatment from the Early Psychosis Support Service (EPSS). The database will contain demographic information (e.g. age, gender), clinical characteristics (e.g. diagnosis, duration of untreated psychosis), information on service use (e.g. inpatient admissions) and scores from self-report questionnaires and clinical interviews. The questionnaires and interviews are already routinely used in the course of normal healthcare provision.
Some information will be collected from the referral letter or other clinical records. The self-report questionnaires and clinical interviews will be administered by a member of the clinical team when you enter the service and up to every 6 months during the time spent with the service. You will receive individual feedback every time you complete these measures/interviews.
The information collected will be stored securely in a password protected file. The data stored will be non-identifiable. Only the research team has access to this information.Research programme
The research programme is a collaboration between NHS Lothian and the University of Edinburgh, specifically the Centre for Applied Developmental Psychology (CADP). The Psychosis Research Group sits within CADP and is concerned with improving clinical and social outcomes for young people and adults distressed by psychotic experience. That is, our research programme seeks to contribute to existing knowledge through empirical support for psychological processes that influence recovery in people distressed by psychotic experience. We are particularly interested in detailed analysis of predictors of outcome and putative mechanisms of change, including psychological and social components, in order to develop more nuanced treatment options for this population. Our research group is also particularly interested in investigating the effectiveness of early intervention. Although there is a significant body of research pertaining to early intervention services for psychosis, there is little that focusses specifically on the adolescent population even though it is known that those with adolescent onset psychosis have worse outcomes over time. It cannot be assumed that findings directly translate from adult to adolescent populations.
Research database title
Early Psychosis Support Service Database
Establishment organisation
NHS Lothian
Establishment organisation address
CAMHS Tipperlinn, Royal Edinburgh Hospital
Morningside Place
Edinburgh
EH8 9AG