(duplicate) Testing methods for feedback from patients with dementia
Research type
Research Study
Full title
Exploring how to obtain patient care experience feedback from patients who have cognitive impairment or dementia
IRAS ID
225144
Contact name
Deborah Baldie
Contact email
Sponsor organisation
NHS Tayside
Duration of Study in the UK
0 years, 5 months, 27 days
Research summary
We aim to identify ways in which we can obtain care experience feedback from patients in hospital who have dementia or cognitive impairment as a step towards learning from their experiences, so care is more person centred, safe and effective which will reflect the culture called for by Robert Francis QC (Francis, 2013). We will train volunteers to interview the patients, as they are independent to the care team.
A review of the literature highlights that this is an unexplored area, leaving this patient group with little voice and therefore limited control over how their care is planned, delivered or experienced.
Research questions:
a.In what ways can we best understand and share the hospital care experiences of patients with cognitive impairment or dementia?
b.What preparation and support do volunteers and care staff need to be able to use these tools and methods to capture patient experience?
The project is an exploratory, participatory study to understand which methods and tools are useful in practice.The researcher will work with a steering group of practitioners and volunteers to use knowledge from previous preparatory work, to test and evaluate tools and methods of feedback in 5 pilot wards where this patient group predominate.
Evaluation of methods will draw on the experiences of volunteers and staff testing the methods and secondary data analysis of data generated from feedback interactions.REC name
Scotland A: Adults with Incapacity only
REC reference
17/SS/0058
Date of REC Opinion
7 Jun 2017
REC opinion
Favourable Opinion