(duplicate) Lung cancer patients' perceptions of Quality of Life measu
Research type
Research Study
Full title
Questionnaire-based Quality of Life measures: Lung cancer patients’ perceptions of their potential usefulness in cancer care
IRAS ID
251507
Contact name
Patrick Cronin
Contact email
Sponsor organisation
Research, Business and Innovation. Aberystwyth University
Duration of Study in the UK
1 years, 0 months, 1 days
Research summary
Lung cancer is one of the most prevalent forms of cancer and has a major impact on the quality of life (QOL) of those affected. Alongside the physical symptoms that are so commonly associated with cancer and its treatment, it is critically important that the psychological distress also associated with cancer is not overlooked; good psychological well-being is crucial to a person’s QOL. The burden that distress and other un-met needs have on the patient can often be overwhelming and detrimental to their recovery. Communication between health professionals and patients can be improved with the prompts provided by QOL measures; with improved communication comes an increased likelihood that patient support needs will be met, distress averted, and QOL strengthened. Hence, upon reviewing the literature, talking informally to staff of NHS Wales and Tenovus Cancer Care, and with the agreement and support of Tenovus Cancer Care (sponsor) and Hywel Dda University Health Board (HDUHB; informal partner), a clear need was identified: what are lung cancer patients’ perceptions of questionnaire-based QOL measures and their potential usefulness in cancer care?
The proposed study will answer this question using semi-structured interviews with LC patients. Participants will be asked to describe their perceptions of two validated the QOL measures (content, length, readability, appropriateness, when they might be administered, etc.). Health board decision-makers appreciate patient-derived evidence: whether or not the patients positively appraise the QOL measures, the data will answer important questions about the place of such tools in routine cancer care. If patients positively appraise one or both QOL measures, guidelines can be provided for the implementation of such a tool, and if these can be implemented with high adherence, a novel path will be forged in the quest for improved, cost-effective cancer care in Wales
REC name
Wales REC 4
REC reference
18/WA/0261
Date of REC Opinion
13 Aug 2018
REC opinion
Unfavourable Opinion