DPUK Clinical Studies Register
Research type
Research Database
IRAS ID
244060
Contact name
Ivan Koychev
Contact email
Research summary
Dementias Platform UK Clinical Studies Register
REC name
South Central - Oxford C Research Ethics Committee
REC reference
18/SC/0268
Date of REC Opinion
27 Jun 2018
REC opinion
Further Information Favourable Opinion
Data collection arrangements
We will be storing data that allows us to detect risk for worsening brain health and dementia. A part of the data will come from tests and measures taken in existing studies that are part of Dementias Platform UK. These will include age, sex, history of medical conditions, cognitive (i.e. thinking and memory) tests and where available genetic and brain scan data. These data will be added to by information provided by the participants in the Register through our website: they will be asked to tell us if they have been diagnosed with dementia or other significant disorders and we will give them short questionnaires to monitor their mood and anxiety symptoms. Participants will be required to do a short cognitive test online and then on their smartphone (if they have one). This collection of data directly from the participants through the website will be repeated every 6 months. Finally, we will be asking studies recruiting participants through the Register to feed back any relevant information to ensure we keep the Register up-to-date.
Research programme
The Register will support the research community working on a better understanding and new treatments for dementia and improving brain health. The researchers will range from those seeking to test new treatments (so-called clinical trials) to those looking to do studies in humans to understand mechanisms behind illnesses (so-called experimental medicine). The investigators will come from universities as well as industrial partners. The value of the Register lies in the wealth of information held on its participants - basing study participation on existing measurements would allow studies to be much more informative of the risks for development of dementia. The Register will also seek to create a community of volunteers interested in dementia and brain health that can help steer researchers.
Research database title
Dementias Platform UK Clinical Studies Register
Establishment organisation
University of Oxford
Establishment organisation address
Department of Psychiatry
Warneford Hospital
Warneford Lane
OX3 7JX