Do Adapted Questionnaires Work for People with Learning Disabilities?
Research type
Research Study
Full title
An evaluation of the psychometric properties of the adapted PHQ-9 and GAD-7 outcome measures for use with adults with intellectual disabilities.
IRAS ID
274545
Contact name
Hannah Jenkins
Contact email
Sponsor organisation
University of Oxford / Clinical Trials and Research Governance
Duration of Study in the UK
0 years, 10 months, 28 days
Research summary
People with Intellectual Disabilities (ID) have more mental health problems than the general population. They face many barriers to getting help for problems such as depression and anxiety. One barrier is the lack of adapted materials, like questionnaires, to help assess mental health problems in people with ID.
Questionnaires are often used in mental health services to assess if people have problems with feeling anxious or depressed and the questionnaires help to check if people are getting better. Some of these questionnaires have been adapted so they are suitable to be used with people with ID. Making adaptations to the questionnaires was part of a previous research project. It is now important to make sure these adapted questionnaires measure what they are supposed to measure (they need to be valid and reliable). This project aims to test if the questionnaires are valid, reliable, and helpful to use with adults with ID. People with ID getting help from mental health services will be asked to complete the questionnaires and we will compare their scores with people who have ID but who are not getting help from services. The questionnaires (adapted PHQ-9 for depression and adapted GAD-7 for anxiety) will also be compared against more established questionnaires (GDS-ID and GAS-ID).
REC name
London - Surrey Research Ethics Committee
REC reference
20/PR/0291
Date of REC Opinion
16 Sep 2020
REC opinion
Favourable Opinion