DiSCOVERY WP 2 - 4 v1.0 21.07.2022
Research type
Research Study
Full title
Post-Diagnostic Dementia Support within the ReCOVERY College Model: A Realist Evaluation (DiSCOVERY) Work Packages 2 to 4 - Realist evaluation of post-diagnostic dementia courses within 5 case studies, review and selection of outcome measures, co-production of key resources
IRAS ID
315262
Contact name
Christopher Fox
Contact email
Sponsor organisation
Norfolk and Suffolk NHS Foundation Trust
Clinicaltrials.gov Identifier
CRD42021293687, PROSPERO
Duration of Study in the UK
2 years, 4 months, 31 days
Research summary
What is the problem?
Receiving a diagnosis of dementia is life-changing for the person and their family. Lots of factors can affect the quality of support post-diagnosis.Mental health trusts have adopted Recovery Colleges to support adults with a range of difficulties. These offer educational courses for people who use mental health services, their families and staff. People living with mental health difficulties work together with staff members with the design and running of the courses. They are called peer tutors.
What do we want to find out?
We want to understand how, following diagnosis of dementia, Recovery Colleges can help people. We want to find out what attending, co-designing, and co-running courses is like for people with dementia, families, and staff. We also want to know how people who access NHS memory services find out about dementia courses.How will we do this?
We will ask questions to find out what works for whom, in what circumstances, and why. We will start from our early ideas on what makes a Recovery College dementia course work.We will visit different dementia courses and interview people. We will discuss this information with everyone involved to reflect real life. We will use this updated theory to co-produce guidance and resources for Recovery Colleges.
How have we worked with people with dementia?
People with dementia and their families helped shape our starting theory of how Recovery College dementia courses could work, by sharing their experiences.How will we share our findings?
We will work together with the national Dementia Engagement and Empowerment Project (DEEP) to share our findings and co-produced resources as widely as possible through local and national groups. These will include NHS memory services, UK Recovery College and other groups that support people with dementia. We will use a variety of media including podcasts, films and talks to engage the public.REC name
West Midlands - Coventry & Warwickshire Research Ethics Committee
REC reference
22/WM/0215
Date of REC Opinion
28 Oct 2022
REC opinion
Further Information Favourable Opinion