DietarY kNowledge And self-Management In early Ckd (DYNAMIC) study
Research type
Research Study
Full title
Supporting children and young people from early stage chronic kidney disease (CKD) to improve dietary knowledge and self-management in CKD: A qualitative co-design study using Photovoice
IRAS ID
332804
Contact name
Pearl Pugh
Contact email
Sponsor organisation
Nottingham University Hospitals NHS Trust
Duration of Study in the UK
0 years, 11 months, 30 days
Research summary
In order to assist children and young people (CYP) with chronic kidney disease (CKD), including those from minority groups, to make better decisions, which will protect their heart health and optimise growth, it is crucial to encourage them to take some ownership of their health through early dietary self-management. In turn, self-management will help them transition to adult care and make them active partners in managing their disease. If CYP are able to tell us what would better help them to manage their condition, we could improve the available support, allowing them to shape the resources they access.
The aim of this study is to give CYP and parents from diverse ethnic backgrounds, such as Polish, Czech, and Indo-Pakistani, and white British the opportunity to record their intake for 3 days, first using photographs, texts, and voice notes on their mobile device, and then using a standard written food diary. The CYP will attend a focus group, where the photographs will be used to encourage critical dialogue to design a program of renal dietary educational resources. The CYP’s dietary resource development ideas will be presented to a commercial company. We will bring all our data together to plan a larger study to develop and test a suite of renal dietary self-management resources that may be used by a larger audience.REC name
East of Scotland Research Ethics Service REC 1
REC reference
25/ES/0055
Date of REC Opinion
1 Jul 2025
REC opinion
Favourable Opinion