Development of the Airway Stenosis Patient Concerns Inventory (PCI-AS)

  • Research type

    Research Study

  • Full title

    The Development of a Patient Concerns Inventory for People Diagnosed with Airway Stenosis (PCI-AS)



  • Contact name

    Justin Roe

  • Contact email

  • Sponsor organisation

    Research Governance and Integrity Team, Imperial College London

  • Duration of Study in the UK

    0 years, 5 months, 1 days

  • Research summary


    Airway stenosis (narrowing of the breathing tube) is a rare condition causing
    significant physical and psychological problems. A common cause is
    when people have breathing tubes placed through their mouths and into their throats
    and need help from a breathing machine (ventilator). If this is not done carefully,
    it can cause swelling and windpipe narrowing. People are also born with this condition or have illnesses that cause it. For some, the cause is unknown. Some people need a single operation, many need life-long specialist care.


    We receive over 70 new referrals each year. Patients often have
    complex needs. During a quality improvement project at Imperial College Healthcare NHS Trust, we asked about patients' experiences of their care. They said consultations can be time-limited and they may not have all their concerns listened to. Patients may find it difficult because of voice and breathing difficulties. Patients wanted a simple way to share concerns in busy clinics. We want to develop a PCI-AS to make consultations patient-led and improve satisfaction. A PCI-AS has the potential to improve patient experience and how airway services run. The PCI-AS may also be helpful in the future as many appointments are now provided by telephone/ videoconsultation because of COVID-19.


    1. Find out what airway specialists think are the most important patient concerns
    2. Meet with patients to find out if their concerns match what clinicians think, what they would like to add and what would help them to complete a PCI-AS. Because of COVID-19, meetings will be held online (e.g. using Zoom). Some people may not be able to use videoconferencing. They can contribute by telephone or by sending us written information.

    A final version of the PCI-AS will be developed, ready for introduction and testing in the clinical setting.

  • REC name

    Wales REC 7

  • REC reference


  • Date of REC Opinion

    5 Mar 2021

  • REC opinion

    Favourable Opinion