Development of a preference-based outcome measure for Palliative Care
Research type
Research Study
Full title
Development of a preference-based outcome measure for use in economic evaluations of palliative care services using the Patient (palliative) care Outcome Scale (POS)
IRAS ID
159556
Contact name
Irene Higginson
Contact email
Sponsor organisation
King's College London
Clinicaltrials.gov Identifier
24611, additional funder's reference number
Duration of Study in the UK
0 years, 10 months, 8 days
Research summary
The aim of this study is to develop a method for evaluating economic aspects of the treatment and care of people with far advanced illness. There is no existing questionnaire which can tell us how patients or the public value different health states in the context of advanced illness.
We will administer a questionnaire which asks individual participants to state how much value (in numerical terms) they attach to different health states. This questionnaire will be developed from an existing, validated patient reported tool called the POS (Patient Outcome Scale). The POS is based on what patients with advanced illness themselves prioritize as important. It is routinely used in clinical practice and in research studies, to assess changes in patients' health status but it cannot be used for economic evaluation without adaptation.This work is important because it provides information to policy-makers and health decision-makers which enables them to make choices about providing healthcare resources which match the priorities of patients and public. Without this work, it is not possible for the views and perspectives of patients with advanced illness, and the public, to be directly taken into account, when making value judgements about palliative care interventions / treatments .
REC name
London - South East Research Ethics Committee
REC reference
15/LO/1774
Date of REC Opinion
21 Dec 2015
REC opinion
Further Information Favourable Opinion