Developing an intervention to improve diagnostic delivery of dementia
Research type
Research Study
Full title
Developing an intervention to improve diagnostic delivery of dementia
IRAS ID
192681
Contact name
Claire Bennett
Contact email
Sponsor organisation
University of Nottingham
Duration of Study in the UK
0 years, 8 months, 0 days
Research summary
Currently there are national government strategies that aim to increase the number of people who receive a diagnosis of dementia. It is not yet known what constitutes a good delivery for people receiving it, for those who support people who receive this diagnosis, and also the healthcare professionals who are required to deliver the diagnostic news. There is also a lack of tools that support the diagnostic process available to either the clinician or service recipient before, during or after the delivery. Both these gaps prevent guidelines or support being developed to promote good diagnostic delivery.
Phase one of this project aims to identify elements of a positive diagnostic delivery from different perspectives by interviewing patients with a diagnosis of dementia and their companions who visit a local Memory Assessment Service in Nottingham, and also staff who work in the same clinic, about their experiences and views of delivery of a diagnosis of dementia. The aim of these interviews is to identify factors across these perspectives that constitute a good or positive delivery of this diagnosis. Existing literature on delivery of bad news and experiences of receiving a diagnosis of dementia will also be drawn upon to ensure a range of factors are identified.
The second phase of the project aims to design a tool, based on the factors identified from the interviews, which could support good practice when delivering or receiving a diagnosis of dementia. The proposed tool will then be taken to two focus groups, one with service deliverers and one with service recipients, to identify if the tool would be helpful in clinical practice and to contribute to the design of the tool.
REC name
East Midlands - Nottingham 1 Research Ethics Committee
REC reference
16/EM/0097
Date of REC Opinion
12 Apr 2016
REC opinion
Further Information Favourable Opinion