Developing a Dementia and Driving Decision Aid UK Version
Research type
Research Study
Full title
Developing a Dementia and Driving Decision Aid UK Version. A collaborative research project between Pennine Care NHS Foundation Trust, Greater Manchester and the University of Wollongong, Australia
IRAS ID
255012
Contact name
Alessandra Merizzi
Contact email
Sponsor organisation
University of Wollongong
Duration of Study in the UK
1 years, 0 months, 1 days
Research summary
In modern times, globally, many people with dementia are also drivers with all the challenges that this implies. The Dementia and Driving Decision Aid (DDDA) is a booklet designed to support people with dementia in making their own decision about driving retirement. It was originally developed and tested in Australia and New Zealand with the co-participation of people living with dementia. Results showed that the use of the DDDA has a positive impact on decisional conflicts about driving retirement.
The aim of this collaborative project is to produce a relevant and suitable UK version of the DDDA booklet involving people living with dementia (who are current or retired drivers), family members and health care professionals working in the field of dementia, for a total of 230 participants.
Similar to the original research project, this study will adopt a qualitative approach.
Participants will be asked to give a general opinion on a draft of the UK booklet and then they will be invited to review the whole decision aid tool page by page.
Data will be collected through:
1 - an online consultation activity (survey that will take 15-30 minutes to complete)
2 – 30-60 minutes face-to-face interviews in focus groups for participants living with dementia (facilitated in Pennine Care NHS Foundation Trust premises)
Content analysis on qualitative survey data using NVivo Pro, version 11 (QSR International) will be conducted for the data generated from the online consultation activity and the focus groups/ interviews. Microsoft Excel (Microsoft Corp) will be used to generate descriptive statistics about the demographic profiles of participants.
The study's outcome may include publishing a person centred resource that sensitively guide people with dementia and family members through the challenging decision of driving retirement. The publication may also contribute to facilitate the process of informed decision making.REC name
West Midlands - Coventry & Warwickshire Research Ethics Committee
REC reference
19/WM/0037
Date of REC Opinion
4 Mar 2019
REC opinion
Further Information Favourable Opinion