DemPower: Living Life & Doing Things Together Couple-Management Guide

  • Research type

    Research Study

  • Full title

    DemPower: Living Life and Doing Things Together couple-management guide for couples living at home in which one partner has dementia- A Feasibility Study

  • IRAS ID

    227249

  • Contact name

    Caroline Swarbrick

  • Contact email

    caroline.swarbrick@manchester.ac.uk

  • Sponsor organisation

    The University of Manchester

  • Duration of Study in the UK

    1 years, 6 months, 26 days

  • Research summary

    This project is one of eight work programmes within the Neighbourhoods and Dementia study developed in response to the former Prime Minister’s Challenge on Dementia (DH, 2012) and is led by a team in Sweden. The key focus of the study is to develop a ‘Living life and doing things together’ couple-management guide for couples where one partner has a diagnosis of dementia and to assess the acceptability of the guide. Colleagues in Sweden compiled a paper based manual by looking at what had been done before and by analysing interview data to identify common issues raised by couples. This was later translated into English. Discussions with couples in England identified a need to make the guide more user friendly, e.g. using visual material rather just written. This study is adapting the guide into an app form and we are aiming to determine how much support couples need to engage with this app and whether they make use of it in their day-to-day lives. If there is support for the app, a future study will assess whether it is superior to ‘usual care’.

  • REC name

    North West - Greater Manchester South Research Ethics Committee

  • REC reference

    17/NW/0431

  • Date of REC Opinion

    18 Sep 2017

  • REC opinion

    Further Information Favourable Opinion