Dementia Caregiver's Access of Information Resources V1
Research type
Research Study
Full title
How do dementia caregivers access information to support their role and what factors influence these decisions?
IRAS ID
168619
Contact name
Amy Tulip
Contact email
Sponsor organisation
Leeds Teaching Hospitals NHS Trust
Duration of Study in the UK
0 years, 4 months, 1 days
Research summary
In the UK, around 670,000 family and friends provide care for dementia patients. It is clear that these individuals require support in their role. This can be achieved by providing caregivers with access to appropriate information. These sources of information may include the GP, District Nurse, Voluntary Organisations such as the Alzheimer's Society and websites.
This study aims to gain an insight into dementia carer's experiences of accessing information. There are several questions that will be explored. Firstly, where do carers go to find information? When do they seek this information? And why do they access information from a particular source?
Individuals will be eligible to take part in this study if they are known to be the informal carer of a dementia patient. Potential participants will be identified by staff members of the Pudsey Integration Team or a GP within Leeds West CCG.
Telephone interviews lasting 10-15 minutes will take place with up to 10 dementia carers. They will firstly receive information about the study before completing a consent form and reply slip to confirm they agree to participate. The researcher will conduct the telephone interviews on the University of Leeds Campus, at a date and time convenient for the participant. The interviewer will guide the discussion and main questions to be covered. Interviews will be digitally recorded. The researcher will write these up in full before analysing qualitatively to identify any key themes emerging from the data.
This research project is being carried out by a Medical Student at the University of Leeds. It forms part of an essential module of the Intercalated BSc Degree in Applied Health (Primary Care). The findings of this study will be written up into a final report and presented to students and academic staff at the University of Leeds in June 2015.
REC name
Yorkshire & The Humber - Leeds West Research Ethics Committee
REC reference
15/YH/0040
Date of REC Opinion
25 Feb 2015
REC opinion
Favourable Opinion