DEHLTA 17-04-2019 v1
Research type
Research Study
Full title
Designing Effective Healthcare services for people with Long-Term pAin (DEHLTA)
IRAS ID
258385
Contact name
Gary J Macfarlane
Contact email
Sponsor organisation
University of Aberdeen
Duration of Study in the UK
4 years, 9 months, 3 days
Research summary
Fibromyalgia is a common condition causing widespread chronic pain, associated with profound fatigue and marked sleep disturbance. Whilst there is considerable evidence on effective treatments, diagnosis and management are complex. Most individuals with fibromyalgia are not receiving timely diagnosis, access to effective treatments or ongoing support with managing the condition. Patients feel dissatisfied with current services believing that no-one is willing to take responsibility for their care. There is almost no evidence on how to effectively organise health services and to deliver healthcare across care settings. We plan to survey individuals who met criteria for fibromyalgia and consented to be contacted for future health survey research in a previous study. We will explore their use of and their experiences with health services as well as the impact of fibromyalgia on their lives. The findings will inform the development of a new model of care for fibromyalgia.
REC name
West Midlands - Solihull Research Ethics Committee
REC reference
19/WM/0162
Date of REC Opinion
5 Jun 2019
REC opinion
Further Information Favourable Opinion