CST for people with LD and Dementia
Research type
Research Study
Full title
The Effectiveness of Adapted Cognitive Stimulation Therapy for People with Intellectual Disabilities and Dementia or Reported Cognitive Decline (a pilot study)
IRAS ID
223084
Contact name
Sarah L Hoare
Contact email
Sponsor organisation
North East London Foundation Trust
Duration of Study in the UK
0 years, 3 months, 24 days
Research summary
Cognitive Stimulation Therapy (CST) is widely used for people who have dementia. It is proven to improve quality of life as well as slowing down cognitive decline. Current research mainly focuses on people who do not have difficulties which could limit their participation in the CST groups and therefore excludes people with Intellectual Disabilities.
Finding an effective and stimulating group for people with ID and Dementia would be important because, people with Downs Syndrome are thought to be at more risk of developing dementia. People with other types of ID are also thought to be at higher risk of dementia than the general population. It would therefore be beneficial to have interventions for people with dementia or cognitive decline in ID. With reasonable adaptations to the CST programme for ID clients, it could be found if and how CST can be an effective intervention for ID.
The aim of this study would be to find if an adapted CST programme for people with Intellectual Disability (ID) and dementia or cognitive decline is as effective as it is for the general population. This would be done by using outcome measures which measure Quality of life, cognitive ability and mood before and after the pilot group. This would be compared to the same outcome measures used on people with ID and dementia or other cognitive decline who are on the waiting list and are receiving 'treatment as usual'. This will find if the CST group will have any positive effect on those with an ID and Dementia or other cognitive decline. We will also involve a focus group for family and or carers of the people who attend the group to find if there have been any observed changes in the person's daily living from the carers and families perspectives.
REC name
London - Queen Square Research Ethics Committee
REC reference
17/LO/0476
Date of REC Opinion
31 Mar 2017
REC opinion
Unfavourable Opinion