Critical CareVIS
Research type
Research Study
Full title
Preparing for critical illness: supporting people with intellectual disability to improve experience, communication and decision making through co-created visual resources (Critical CareVIS)
IRAS ID
366071
Contact name
Natalie Pattison
Contact email
Sponsor organisation
University of Hertfordshire
Duration of Study in the UK
1 years, 10 months, 0 days
Research summary
In this project, we will work with people with intellectual disabilities (also called learning disabilities) to help people understand what critical illness and critical care is. This will help people make choices about their health and what they would like to happen to them; this is called advanced care planning. There are currently no Easy Read or accessible information about critical care available on national websites and support groups. For some people, words are very hard to follow and to understand and remember, so we will design different information in different formats. Supporting people in their decision making about their health is a recognised reasonable adjustment to accessing care [27-29]. This is legally required in England [30].
We will co-produce materials in different media (video, easy read etc) to help people with learning disabilities prepare and express their wishes when faced with critical illness and ICU admission. We are undertaking interviews with people with learning disabilities and their carers (Work package 1), workshops with PPI groups to design resources using the data from the interviews (Work package 2) and focus groups (group discussions) for stakeholder engagement and integration of these resources into clinical practice (Work package 3).REC name
Social Care REC
REC reference
26/IEC08/0003
Date of REC Opinion
31 Mar 2026
REC opinion
Further Information Favourable Opinion