CP Hip Outcomes Project (CHOP)
Research type
Research Study
Full title
Outcomes of Hip Interventions for Children with Cerebral Palsy - An International Multi-Centre Prospective Comparative Cohort Study
IRAS ID
157711
Contact name
Tim Theologis
Contact email
Sponsor organisation
Holland Bloorview Kids Rehabilitation Hospital
Duration of Study in the UK
4 years, 11 months, 31 days
Research summary
Children with severe cerebral palsy (CP) are at high risk for dislocating their hips. These hips are associated with contractures and pain, which can interfere with care-giving, seating, positioning, mobility and quality of life. The primary purpose of this project is to evaluate the effectiveness of different intervention strategies to prevent or relieve the symptoms associated with hip instability in children with severe non-ambulatory CP, using the Caregiver Priorities and Child Health Index of Life with Disabilities (CPCHILD©) questionnaire as the primary outcome measure of health related quality of life (HRQL) for this population. Secondarily, this project will also measure the impact of hip displacement on HRQL of these children. This project will be the first of its kind and this scale, which will systematically study the impact of hip instability and its management in children with severe CP, using a meaningful outcome measure that was developed specifically for this purpose. The international network of investigators/sites and the infrastructure established for this project will facilitate the long term follow-up of the participants in this study, as well as the conduct of other multi-centre clinical trials and cohort studies to evaluate the effectiveness of current and future interventions aimed at improving the quality of life of children with severe disabilities.
REC name
South Central - Oxford A Research Ethics Committee
REC reference
16/SC/0045
Date of REC Opinion
5 Apr 2016
REC opinion
Further Information Favourable Opinion