CP-All About Me
Research type
Research Study
Full title
CP-All About Me Study: Perceptions of facilitators and inhibitors to engagement with and the potential effectiveness of physiotherapy intervention by children and young people with cerebral palsy, their parents and children’s physiotherapists: a qualitative study and development of an existing intervention planning framework
IRAS ID
311409
Contact name
Xanthe Hodgson
Contact email
Sponsor organisation
Great Ormond Street Hospital for Children NHS foundation trust
Duration of Study in the UK
0 years, 6 months, 13 days
Research summary
Cerebral Palsy (CP) is the most common childhood movement disability. CP is diverse in the areas of the body affected, the movement difficulty, and the type and extent of associated disorders (e.g. epilepsy, communication difficulties). The way disability is experienced is also individual to each person, therefore the different factors that influence function and participation will vary.
The International Classification of Functioning, Disability and Health (ICF) encourages a person-centred approach to healthcare. It acknowledges that health and quality of life relate to multiple factors including interactions between a health condition, personal attributes and environmental influences.
A framework based on the ICF (CP-All About Me, CP-AAM) has been developed to provide a holistic way to plan physiotherapy for children with CP and promote a uniform approach to intervention. This two-phase study continues its development by ensuring all the factors that act as either barriers or facilitators to physiotherapy outcomes are identified:
PHASE ONE: Exploration of the factor’s children and young people with CP believe influence outcomes
Children and young people attending Great Ormond Street for botulinum toxin injections will take part in structured interviews to identify what they believe help supports their physiotherapy intervention, and what might get in the way.
PHASE TWO: Design an implementation protocol for using an existing intervention planning framework CP-AAM in clinical practice
Physiotherapists from four NHS Community teams will consider how best to communicate the ideas of the CP-AAM to families and jointly use it to plan a child’s physiotherapy. .
A PPI Advisory group– children and young people with CP, parents of children with CP and an adult with CP, all of whom have accessed NHS physiotherapy services- has reviewed and agreed the design and will oversee the study.
Study funding from the National Institute for Health Research as part of a Clinical Pre-Doctoral Research FellowshipREC name
London - Central Research Ethics Committee
REC reference
22/PR/1099
Date of REC Opinion
19 Aug 2022
REC opinion
Favourable Opinion