Coping longer-term with CUP
Research type
Research Study
Full title
Patients’ experiences of coping longer-term with cancer of unknown primary
IRAS ID
251064
Contact name
Hayley Slater
Contact email
Sponsor organisation
Lancaster University
Clinicaltrials.gov Identifier
not applicable, not applicable
Duration of Study in the UK
0 years, 7 months, 28 days
Research summary
This study will seek to explore the experiences of coping of individuals who are living 'longer-term' with cancer of unknown primary (CUP) i.e. being maintained/stabilised on treatment over 6-months post-diagnosis. This group of patients represent a relatively small sub-group as, unfortunately, a CUP diagnosis is often received in the later stages of illness with a poor prognosis. Research with populations experiencing other cancer diagnoses has highlighted that a range of coping strategies are employed with direct impacts on psychological distress. Uncertainty has been identified as a factor which increases distress for those with cancer. Relatively little is known about the experiences of those diagnosed with CUP, which is a condition entailing a great deal of uncertainty in relation to prognosis, treatment, and illness progression and no research so far has focused specifically upon patients who are stable on treatment so far beyond their diagnosis, and as such have been living with CUP for a prolonged period. Therefore the current study will investigate coping experiences within this population. Data will be gathered via interviews with patients.
REC name
North West - Liverpool Central Research Ethics Committee
REC reference
19/NW/0096
Date of REC Opinion
9 Apr 2019
REC opinion
Further Information Favourable Opinion