Content Validity of the Scoliosis Research Society Questionnaire
Research type
Research Study
Full title
Content validity of the Scoliosis Research Society questionnaire-22r (SRS-22r) for Adolescents with Idiopathic Scoliosis : a qualitative interview study exploring patient's and practitioner’s perspectives.
IRAS ID
289888
Contact name
Adrian Gardner
Contact email
Sponsor organisation
The Royal Orthopaedic Hospital NHS Foundation Trust
Duration of Study in the UK
0 years, 6 months, 1 days
Research summary
Adolescent Idiopathic Scoliosis (AIS) is the commonest adolescent spinal deformity. How it affects children is currently measured using the Scoliosis Research Society Questionnaire - 22r (SRS-22r), a patient-reported outcome measure (PROM).
When using a PROM, it is important to know that a PROM is accurate and truthful for what it is measuring. This is called content validity. Our recent work has shown that there is not good information about the content validity of the SRS-22r. It also showed that the use of PROMs such as the SRS-22r is preferred over other types of assessment such as exercises for those with AIS.
Content validity for the SRS-22r is assessed through interviews with adolescents with AIS, where questions are asked about the condition and how it affects day to day life. Also, hospital staff are also asked how useful it is to them in helping those with AIS. Through this, we want to understand the good and the bad of the different PROMs, so that the best can be used, so that those with AIS get the best outcome from their treatment.
This proposal comprises:
- An interview with an adolescent with AIS where questions are asked about how AIS affects their life, and then about the SRS-22r questionnaire and whether it is relevant to them, understandable and covers all the important features of their AIS.
- Two focus groups with hospital staff how deal with AIS to assess the usefulness of the SRS-22r and the reasons other PROMs are not used.Specialist techniques called “grounded theory data collection” and ‘thematic analysis” will be used for the analysis to understand the responses from both the interviews and focus groups.
REC name
West Midlands - South Birmingham Research Ethics Committee
REC reference
21/WM/0076
Date of REC Opinion
7 May 2021
REC opinion
Further Information Favourable Opinion