Consultation Guide for Young People with AIS
Research type
Research Study
Full title
The collaborative development of a consultation facilitation guide (CFG) for young people participating in Adolescent Idiopathic Scoliosis (AIS) consultations
IRAS ID
222440
Contact name
Lucy Bray
Contact email
Sponsor organisation
Edge Hill University
Duration of Study in the UK
1 years, 0 months, 30 days
Research summary
Background - Evidence from the literature and from our public engagement suggests that young people with Adolescent Idiopathic Scoliosis (AIS) have sub-optimal experiences of engaging in communication during planned consultations with health professionals. This can impact on their ability to gain credible information about their condition and make informed choices and decisions about their treatment pathway. Interventions to improve engagement within planned consultations have been shown to have a positive effect with adult patients. There is currently no rigorously developed intervention to facilitate young people to actively engage in consultations relating to planned treatment or surgery.
Aim – This study aims to collaboratively develop a consultation facilitation guide (CFG) for young people participating in AIS consultations.
Design - This will be a two-phase study. Phase one will use video-supported observations of clinic consultations (n=20), video-elicitation interviews (n=20) with young people (aged 13-18yo) and their parents. Phase 2 will involve the collaborative development of the CFG through participatory workshops with young people, their parents and health professionals.
Importance to NHS- The CFG aims to improve the ability of young people with AIS to engage with health professionals and participate in choices and information exchange about their condition. This study will inform future work which will involve evaluating the use and influence of using the CFG in practice.REC name
London - Bromley Research Ethics Committee
REC reference
17/LO/0261
Date of REC Opinion
13 Feb 2017
REC opinion
Favourable Opinion